The Vaccine/MS Connection

When my wife was diagnosed CIS (Clinically Isolated Syndrom) which is a first course of the MS disease progression, I was bound and determined to discover what caused, or what was causing this disease to attack her.

One of the first things I discovered was that the disease was more likely to occur in women. The further a person lives from the equator would also raise the chances of MS significantly.  According to http://www.healthline.com: “Above the thirty-seventh parallel there are between 110 and 140 cases per 100,000 people, and below the thirty-seventh parallel there are between 57 and 78 cases per 100,000 people, that is nearly double the cases of MS in the northern half of the United States.”

 

map-37th-parallel_orig

Image from Harvard Health

My wife fit the stats, a female that grew up above the thirty-seventh parallel. What troubled me though, as there are a lot of females that lived above the 37th parallel that do not have MS.

The anti-vaccine movement has been gaining a lot of traction, and the topic is very divisive. I found research and discussions that claim that vaccines may MS. One of the issues is that type of research is difficult to fund.

I do not dispute the importance of vaccines, or their effectiveness. I do believe what the pro-vaccine people do not acknowledge is the additives in the vaccines that could possibly be causing auto-immune diseases such as MS.

This information straight from the Center for Disease Control (CDC) website was enough to cement my own decision of not to be vaccinated again.

“Some vaccines made from weakened or dead germs contain naturally occurring adjuvants and help the body produce a strong protective immune response.”

What exactly is an adjuvant? The CDC continues: “Aluminum gels or aluminum salts are vaccine ingredients that have been used in vaccines since the 1930s.  Small amounts of aluminum are added to help the body build stronger immunity against the germ in the vaccine. Aluminum is one of the most common metals found in nature and is present in air, food, and water. The amount of aluminum present in vaccines is low and is regulated by the U.S. Food and Drug Administration (FDA).”

This is the same FDA that says these eleven things on this website are just fine: https://www.cbsnews.com/pictures/11-revolting-things-government-lets-in-your-food/

I see a future where big pharma influence is removed from the FDA’s decision-making process and the people’s health interests will be placed before jobs and money.

Until next time,

Jay T. Blankenfeld

CDC Source: https://www.cdc.gov/vaccinesafety/concerns/adjuvants.html

Dollars for Docs

Are pharmaceutical companies influencing your doctors decisions?

One of the biggest complaints I have read from MS sufferers seeking the HSCT treatment is that their neurologists tell them not to do it. The doctors do not appear to have legitimate reasons when the say things such as “we don’t know much about it” or “the logistics make it difficult” and some docs have even used scare tactics to persuade their patients into staying on the medicine. For starters, this treatment started in the mid 80’s. If a doctor does not know much about it, get a better one. I am also not certain why a doctor would think the logistics of going to Mexico or Russia for 30 days is more difficult than a lifetime in a wheelchair.

Are pharmaceutical companies influencing your doctors decisions? See how much your doctor was being paid by them by using the link below. The data is for the time period from August 2013 to December of 2015

Dollars for Docs

Social Media, MD

I dove into research. I knew in my heart there was a way to cure Amy’s disease.

There is a serious breakdown in the system when it is much more convenient and trustworthy to obtain medical advice via Facebook and blogs such as this.  When my wife received her official diagnosis of multiple sclerosis I gave the healthcare system the stink-eye when they told us that drugs were our only option to stop the progression of her disease.

I sought help from the National MS Society and all I learned from them was that Amy would probably end up in a wheelchair, but on the bright side our insurance would cover a little bit of the cost of the drugs that fund that organization. We were still obligated to pay $1800 per month.

I dove into research. I knew in my heart there was a way to cure Amy’s disease. If I didn’t at least try I am not certain I would be able to look my kids in the eye again. How could I show them what grit was, if I didn’t have grit myself.

Facebook and blogs written by people that had a procedure called hematopoietic stem cell transplant (HSCT) proved my heart was right. People were having their multiple sclerosis and other autoimmune disease stopped, and even some of them had their disabilities reversed after they went through with the procedure that our doctors told us nothing about.

Do not let the media and doctors fool you. This procedure is not new. The first transplant performed on someone with an autoimmune disease was in 1985.  Since that successful transplant 33 years ago 15 drugs* for MS have been approved by the FDA. This is an indicator that the one time procedure in not profitable for big pharm.

*Source: National MS Society http://www.nationalmssociety.org/NationalMSSociety/media/MSNationalFiles/Brochures/Brochure-The-MS-Disease-Modifying-Medications.pdf

I hope this blog will do what doctors will not, and that is to inform people about this procedure that stopped my wife’s multiple sclerosis.

Too little too late.

There are three clinics in the United States that perform HSCT. All of these clinics prescribe to the Dr. Burt protocol which unfortunately excluded my wife from having the procedure done here..

The criteria are one must fail on two different Disease Modifying Therapy (DMT) i.e. drugs, and there must be active lesions.

Failing on two different medications takes time, and that was something we didn’t have. My wife and I quickly went from accepting she had Multiple Sclerosis to finding a way to slow it down. We treated the disease like a ticking time bomb. We knew another relapse was coming but didn’t know if it would be the one to bind her to a wheelchair. The graph below shows that the sooner one has HSCT in the disease progression, the more effective it is.

 

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Another issue with the protocol is the active lesion. As any neurologist will tell you, nobody knows what causes MS.  Lesions are a result of MS, not a cause. These criteria are not only another setback for people desperately in need of this procedure but will slow down progress in this country.

As one of the Facebook posts read “it would be like winning the Powerball to have HSCT done in the United States”

There are clinics in other countries that have a more common sense approach to halting the disease progression and a list of helpful groups can be found at this link: HSCT Facebook Groups

No Chemo….No Cure!!!

The FDA has also failed to differentiate between these snake oil clinics and the legitimate ones that perform Hematopoietic Stem Cell Transplantation (HSCT)

According to a April 29th, 2018 Washington Post article Miracle Cures or modern quackery? “Stem Cell clinics multiply, with heart breaking results for some.”

Unfortunately the authors of this article failed to mention why the stem cell clinics they refer to are not successful. These “pop up” clinics do not use chemotherapy. The chemotherapy is the critical step in the procedure that nearly eradicates the immune system. The stem cells are then reintroduced to the body and the immune system is rebuilt.

These dime shop clinics The Washington Post refer to not only confuse would-be patients of the legitimate stem cell therapies that the HSCT.blog intends to inform people about, but have also confused the folks at the Food and Drug Administration (FDA). The FDA has also failed to differentiate between these snake oil clinics and the legitimate ones that perform Hematopoietic Stem Cell Transplantation (HSCT) for people with Multiple Sclerosis and other autoimmune diseases. FDA Commissioner Scott Gottlieb and his predecessor blamed the agency’s limited resources for the lack of aggressive action (towards these clinics) in the past.  #nochemonocure #hsctstopsms

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Multiple Sclerosis may cause heat intolerance

Our doctors did not tell us about this treatment.

I used to think my wife was tired of hanging out with me when she always needed to go in the house on days when it was somewhat hot out. “You know we are living in the wrong state if you can’t handle this heat” I used to tell her.

About ten months ago, as I was attempting to diagnose the cause of her blindness I stumbled across several articles citing that heat intolerance is a very common occurrence with people with multiple sclerosis.

Since Amy’s treatment she has spent at least an hour or two in the sun everyday without issue. Although it is only the end of April and my Midwest and Northern friends may find it hard to imagine, but we have had some hot days already.

Stem Cell Transplantation has the highest success rate for those early in the disease progression. Our doctors did not tell us about this treatment. It took Facebook and blogs like this to get educated. #payitforward

Multiple Sclerosis may cause heat intolerance

Our doctors did not tell us about this treatment.

I used to think my wife was tired of hanging out with me when she always needed to go in the house on days when it was somewhat hot out. “You know we are living in the wrong state if you can’t handle this heat” I used to tell her.

About ten months ago, as I was attempting to diagnose the cause of her blindness I stumbled across several articles citing that heat intolerance is a very common occurrence with people with multiple sclerosis.

Since Amy’s treatment she has spent at least an hour or two in the sun everyday without issue. Although it is only the end of April and my Midwest and Northern friends may find it hard to imagine, but we have had some hot days already.

Stem Cell Transplantation has the highest success rate for those early in the disease progression. Our doctors did not tell us about this treatment. It took Facebook and blogs like this to get educated. #payitforward

International Trial Results

Doctors on Sunday hailed what they say is a major breakthrough in the treatment of multiple sclerosis, halting progress of the disease and relieving symptoms in some patients.

My wife was in Mexico over half way through her HSCT treatment when the results of an international trial on stem cell transplant treatment was released. After reading the results of the study, one of her Mexican doctors said to her “now you can say that you had stem cell therapy before it was cool”.  I must add he said this in perfect English.

After reading about the results of the study via the link below, I knew the news was big. According to the study,  stem cell transplantation had a failure rate of 6% versus a 60% failure rate when given the drug treatment.

https://www.telegraph.co.uk/science/2018/03/19/stem-cell-treatment-offers-new-hope-multiple-sclerosis-patients/

The Journey Begins

Welcome to the HSCT for MS & other Autoimmune Diseases Blog. If you want to learn more about this medical procedure you came to the right place. My wife was diagnosed with Multiple Sclerosis (MS) in June of 2017 and had the procedure in March of 2018 in Mexico.

I created this blog because I wanted another source for those out there that may have been recently diagnosed, or know someone that has. Our doctor did not tell my wife about this procedure, and I have discovered this is quite common. There are also doctors that will tell their patients not to go through with the procedure. This is also quite normal especially with neurologists, so do not fear.

Hematopoietic stem cell transplantation (HSCT) is a stem cell therapy where the stem cells are extracted from the body, the immune is killed with chemotherapy and then the stem cells are put back into the body so the immune system can be rebuild.  This has been found to stop the disease progression. In other even simpler words, the doctor presses Ctl-Alt-Delete and the immune system is reset.

This blog will coincide with my HSCT for MS Podcast. I will be interviewing people that have gone through with the procedure so listeners can hear first hand experiences of why they decided on HSCT, and where they went to have it done.

Thank you for your interest.

Good company in a journey makes the way seem shorter. — Izaak Walton